Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease Epidermolysis Bullosa

Mar. 15, 2025

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT.Photo:Todd Williamson/Shutterstock for ebmrf

Todd Williamson/Shutterstock for ebmrf

This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success.

On September 21, theEpidermolysis Bullosa Medical Research Foundationhosted its 7th annual event in Malibu, Calif., raising over $1 million in one night for research and to find a cure for the rare skin condition. The foundation is the only all volunteer, nonprofit funder of research for EB.

This year, several celebrities supported the cause, includingPink— who was the special performer at the concert —Courteney Cox,Kaley Cuoco,Tom Pelphrey,Elizabeth Olsen,Brad Pitt,Ines de Ramon,Catherine Bell,Judd Apatow,Kim Basinger,Ed O’Neilland more.

Andrea Pett-Joseph and Paul Joseph launched the Los Angeles chapter of the EBMRF in 2005, and took over day-to-day operations of the foundation later that year. Their involvement began after theirson Brandon, now 20, was born withepidermolysis bullosa.

EB — often called the “butterfly disease” because the condition leaves the skin as fragile as a butterfly’s wings — is a genetic disorder that causes painful blisters on the skin and internal organs from even the slightest touch or friction. The result is disfiguring scars and often, early death from skin cancer.

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT.Todd Williamson/Shutterstock for ebmrf

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Nearly 20 years later, Andrea and Paul say the EBMRF is most recognized for their Rock4EB! concert. During the event, several stars stressed how important the foundation was.

“This is very near and dear to my heart,” Cox told PEOPLE. “This event is so important because we need to raise awareness. We need to continue to raise funds. This is such a behind-the-scenes charity no one understands. It needs to be talked about.”

“I’ve kind of been part of this for a very, very, very long time, and I’ve seen what it can do,” Cuoco said of the fundraiser. “I just like to be able to be here and be as supportive as I can. I love that family, and I think this is a terrible, terrible disease, and it should not be real.”

“It’s a really important charity, and they’re making a lot of progress,” added Apatow, who hosted the event. “So I’m always happy to help when called.”

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Ahead of the annual fundraiser, Andrea told PEOPLE that she can’t believe it’s been two decades working with the foundation, assuring their work is far from over.

“We always joke with all the researchers and say, ‘We’d love nothing more than for you guys to put us out of business.’” Paul added with a laugh. “But yeah, we’re thrilled.”

“We are never going to have enough dollars to fund something from inception to actual public use,” he continued. “But the idea that we can hand off the baton and get other pharmaceutical companies involved and other foundations, and more research, that’s really the multiplier effect where we felt we added some value.”

source: people.com